Integrated Data Repository (IDR)
We have developed a state-wide integrated data repository (IDR) that brings clinical information together into one centralized database from sources throughout the state. The IDR contains de-identified clinical information which allows researchers to determine whether there are sufficient numbers of patients suitable for clinical trials or research projects.
The IDR currently contains de-identified clinical information on 2 million patients from WVU Medicine, Medsite and Epic (Merlin) systems, some of which dates back to 1994. This information includes demographic data such as gender and age, diagnosis data, medical procedure information, laboratory test results and medications. Eventually, clinical data will also be imported from other clinical sources residing at WVCTSI participating institutions.
In addition to providing de-identified patient data for researchers to browse, the Biomedical Informatics group has recently begun providing identified WVU Healthcare patient data to researchers who have appropriate IRB authorization.
How To Get Started
1. If you are not yet a member of the WVCTSI, Apply here.
2. Complete the WVCTSI IDR Web Account Request (Click on "IDR Account Application" in the lefthand navigation menu).
3. Utilize the IDR Web Portal to identify patient counts for your area of research.
How to Request Additional Data
In order to better assist with your research, it is recommended that all researchers have a consultation with the Clinical Research Design, Epidemiology, and Biostatistics program to assist with their study design prior to submitting a data request. Contact Baqiyyah Conway, Ph.D., for more information.
Sign in to the IDR Web Portal, click on Data Request then Create New to access the data request form. Please include a detailed description of inclusion/exclusion criteria and exact ICD9, ICD10, and CPT codes whenever possible.
If you are requesting Protected Health Information:
- Please include copies of the following information from the IRB for our records.
- IRB Approval Letter
- HIPAA Waiver of Consent
- IRB Approved Variable List
- Preparatory to Research activities? Please include your approval from the IRB with your request.
Not sure where to start or need additional assistance? Contact Julie Lockman, PhD, who can guide you to the appropriate additional WVCTSI resources available.
Already Have An Account?
Go to http://idr.wvctsi.org to log into the IDR. (Accessible only to those within the WVU network) Enter your username and password in the designated fields in the upper right corner of the page.
To learn more about the IDR and how it can help you in your research, please contact:
Matt Armistead, BMIR Programmer Analyst, West Virginia Clinical and Translational Science Institute